Wednesday, February 24, 2010

How to get Cayston

Here's a link with info on how to get Cayston
Tuesday, February 23, 2010

Big News! Cayston Approved

U.S. Food and Drug Administration Approves Cayston(R) (Aztreonam for Inhalation Solution) for the Improvement of Respiratory Symptoms in Cystic Fibrosis Patients with Pseudomonas Aeruginosa)

Link: CF Foundation Plays Important Role in Bringing New Inhaled Antibiotic Cayston to Patients
Friday, February 19, 2010

The CF Discovery Series

Here are some upcoming dates for the CF Discovery Series.

If you have questions about any of the lectures contact the CFRI

The CF Discovery Series: "Lung Transplantation"
March 9, 2010 at Crown Plaza Cabana, Palo Alto, CA

The 23rd National CF Family Conference "Quest for Better Health: Whatever it Takes!"
July 30 - August 1, 2010 at the Sofitel San Francisco Bay.

CFRI Golf Tournament
August 2, 2010 at Cinnabar Hills Golf Course, San Jose, CA.

The CFRI Teen & Young Adult Day Retreat " Must See TV: CF in HD"
August 3 - 9, 2010 at Vallombrosa Center, Menlo Park CA.
Thursday, February 18, 2010

A Free Seminar at Stanford

This is a Free seminar co-sponsored by CFRI

To Register: Call 650-493-8070 or 408-971-7292
You may also register at:

Special Needs Trust Presented by Michael Gilfix Esq.

Gilfix & La Poll Associates LLP What is a Special Needs Trust? Why is it a "must do"if a child or other family member is disabled? How can a family member with disabilities have a trust and still keep public benefits? What can and cannot Special Needs Trust funds be used for?

Wednesday, March 24, 2010 (1:00 –3:00 pm)
CrownePlaza CabaƱa
4290 El Camino Real, Palo Alto, CA 94306
Monday, February 15, 2010

'Antivirulent' drugs aim to combat antibiotic-resistent bacteria

From the National Post:

Tom Blackwell, National Post
Published: Sunday, February 14, 2010

As many bacteria become resistant to the effects of the original miracle drug -- leading to thousands of deaths a year in Canada -- scientists here and elsewhere have quietly begun developing a whole new way to combat the infectious threat.